Monday, October 24, 2011

Update on our daughter

I wanted to thank everyone for the prayers! The support and encouragement from our friends and especially our extended family has been deeply appreciated.

We hold our breath and cross our fingers and hope that things have returned to normal with Ohana. This weekend was surprisingly good. With a birthday party and relatives at our home, we were prepared for the worst. Even with a severe allergic reaction at 4:00 in the morning and not nearly enough sleep, we didn't see the meltdowns we were expecting. It is amazing how a few good days changes your perspective on everything.

We enacted some new procedures to increase structure around the home, and that has helped. We have also developed an effective sleeping strategy. Jenetta and I take turns each night sleeping next to Ohana on the guest room bed. She still has some anxiety at night, but it has lessened, and it is easy to get her calmed back down when we are next to her. Sometimes a gentle touch on her arm is all that is needed to get her relaxed and back to sleep. So it has been better from that perspective (although we look forward to the time we can return to normal sleeping patterns!)

Ohana seems to have a real disconnect between the choices she makes and the results from those choices. She has worked through a lot of her delays, but this is a lingering one for her. In many ways, she reacts more like a 3 or 4 year old and just doesn't understand the consequences of her behaviors. We are starting a new therapy session soon, and this will be a large focus of that time.

As Ohana has matured, it has been interesting for us to hear her talk more about what she is feeling and what she has gone through. Several times over the past few days she has told people her "life story." It goes something like this...

I used to live with (bio parent's names) but they couldn't take care of me. I then went to live with Grandpa and Grandma but they couldn't take care of me either. Then I lived in five other houses. They didn't want me, but they wanted to adopt my sister because she was still a baby. Then I came to live here with my mom and dad. They can take care of me so they adopted both of us.

The details and the placement order changes somewhat each time she tells it, but it always ends the same way.

That's what we are trying our best to do... take care of them. Thank you to everyone who has been taking care of us during these difficult weeks.

3 comments:

Nikki Crockett October 24, 2011 at 8:47 PM  

I'm so glad to hear that things have settled down a bit. Crowns in heaven the size of sky scrapers for you and Jenetta! :0)

Jess October 24, 2011 at 11:06 PM  

Wow! I'm encouraged by your update and deeply moved by your telling of Ohana's "life story". I'm so thankful that she has you two to love and take care of her. I pray that you will continue to see the fruit of your love and investment in her life and that God will grant you wisdom, patience and guidance in abundance as you continue through your journey with Ohana and Lynn. Love you guys!

Greg and Tanya January 11, 2012 at 12:01 PM  

Haven't heard from your family in a long time! Hope everything is going better with Ohana and that you were able to have a wonderful Christmas!
Tanya :)

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